So it's been a bit since the sleep study and we've gotten the full report. Max has OSA (Obstructive Sleep Apnea) enlarged adenoids/tonsils. Dr. says it is on the mild end with 4.6 disturbances every hour. You call that mild?!
He continues to sleep poorly, up and down and very restless every night. Because he can never get to that REM sleep, he is wound up all day, some days can't keep up with him. Then he crashes out late afternoon making it hard for him to calm down in the evening and fall asleep.
We are debating on having the surgery to have the tonsils and adenoids taken out. Sounds like the biggest benefit we could see would be a change in behavior, for the better. Oh how nice this would be! :) And the added benefit of all of us sleeping better would be nice.
We are concerned about the risks of the surgery and putting him through such a procedure. We have a CF Clinic visit coming up in the next couple of weeks so we will talk with his Dr. and get more information to make our decision.
I'm leaning toward the surgery. Anyone out there been through this with their kids, any advice, thoughts, wanna share your experience??
Thursday, January 22, 2015
Friday, January 2, 2015
2014 - That's a Wrap
Another year down, another beginning. The holidays came and went so quickly. The days seem to just blur in to one. Ready for the new year and to get back to normal routines.
Between being sick and Christmas, Paige ended up missing an entire week of school. That was fun... Every morning she would wake up and ask if it was a school day. Sadly I would respond with a no. It was a long week filled with agression, mood swings, and tantrums, but we made it! I've mentioned before that she doesn't do so well when she is out of school. She thrives in that super structured setting. And I love that she has that to go to. I still work to get some of that structure here at home.
Christmas Eve we went to my parents for dinner and presents. There was a nice size crowd and I wondered how Paige would do. Sure enough it didn't take long for her to become anxious and overwhelmed by everyone. She would run off into another room and pout for a bit complaining it was loud and just to much for her. Then she'd come back out and try it again, only to have to step away again. I was so proud of her though, she was able to use her words and express to me how the situation was making her feel and that she needed everyone to not talk to her because it was just to much for her. Her preschool has really helped her feel more confident in being able to stand up and express her feelings and what she needs. I am so, so grateful for this progress. We still have a ways to go with her, but even though Christmas Eve was rough, I felt more confident myself, in being able to stay calm and respond to her in a way that made her feel safe and calm so that we could go back out and enjoy the long evening with everyone.
I reflect back on this past year, and it's been a rough one. I think the toughest year I've had. I have been pushed and challenged in ways I never thought I would be. My kids need so much!! But I've been given so many tools along the way and feel that these challenges and experiences have only made me stronger and better able to meet and understand the needs of my kids. And I have a greater outlook for 2015. Let's do this!
Between being sick and Christmas, Paige ended up missing an entire week of school. That was fun... Every morning she would wake up and ask if it was a school day. Sadly I would respond with a no. It was a long week filled with agression, mood swings, and tantrums, but we made it! I've mentioned before that she doesn't do so well when she is out of school. She thrives in that super structured setting. And I love that she has that to go to. I still work to get some of that structure here at home.
Christmas Eve we went to my parents for dinner and presents. There was a nice size crowd and I wondered how Paige would do. Sure enough it didn't take long for her to become anxious and overwhelmed by everyone. She would run off into another room and pout for a bit complaining it was loud and just to much for her. Then she'd come back out and try it again, only to have to step away again. I was so proud of her though, she was able to use her words and express to me how the situation was making her feel and that she needed everyone to not talk to her because it was just to much for her. Her preschool has really helped her feel more confident in being able to stand up and express her feelings and what she needs. I am so, so grateful for this progress. We still have a ways to go with her, but even though Christmas Eve was rough, I felt more confident myself, in being able to stay calm and respond to her in a way that made her feel safe and calm so that we could go back out and enjoy the long evening with everyone.
I reflect back on this past year, and it's been a rough one. I think the toughest year I've had. I have been pushed and challenged in ways I never thought I would be. My kids need so much!! But I've been given so many tools along the way and feel that these challenges and experiences have only made me stronger and better able to meet and understand the needs of my kids. And I have a greater outlook for 2015. Let's do this!
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